Challenges of Open Data in Medical Research

Abstract

The success of modern, evidence based and personalized medical research is highly dependent on the availability of a sufficient data basis in terms of quantity and quality. This often also implies topics like exchange and consolida- tion of data. In the area of conflict between data privacy, institutional structures and research interests, several technical, organizational and legal challenges emerge. Coping with these challenges is one of the main tasks of information management in medical research. Using the example of cancer research, this case study points out the marginal conditions, requirements and peculiarities of han- dling research data in the context of medical research. Introduction