Abstract
Objectives To assess self-reported quality of life (QOL) in a large multicenter cohort of adolescent and young adults surviving Fontan. Study design Cross-sectional. The Pediatric Quality of Life Inventory (PedsQL) was administered to 408 survivors of Fontan ages 13-25 years enrolled in the Pediatric Heart Network Fontan Follow-up Study. Subjects also completed either the Child Health Questionnaire (age <19 years) or Short Form Health Survey (age ≥19 years). PedsQL data were compared with matched controls without a chronic health condition. Correlations between the measures were examined. Results Mean PedsQL scores for subjects receiving Fontan were significantly lower than those for the control group for physical and psychosocial QOL (P
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Uzark, K., Zak, V., Shrader, P., McCrindle, B. W., Radojewski, E., Varni, J. W., … Atz, A. M. (2016). Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation. Journal of Pediatrics, 170, 166-172.e1. https://doi.org/10.1016/j.jpeds.2015.11.016
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